Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Alternate Title

Can I tell you about being a young carer?

Author

Aldridge, Jo

Aldridge Deacon, Jack [illustrator]

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2019

Physical Description

Softcover; 56 pages

Series

Can I Tell You About...?

Subject

Young carers

Caregiving

Abstract

Meet Carly. Carly is a young person caring for her mother who has Multiple Sclerosis and depression.

Part of the best-selling Can I Tell You about... series, this book raises awareness about children who live with and care for parents or other relatives in the home. It describes what young carers like Carly do, and the practical and emotional impact caring can have on home and school life, both positive and negative. It also explains what support is available for young carers, including from family, friends and teachers as well as other professionals and online. Carly's story will help young carers explore their worries and concerns, and help family members and professionals support young carers.

Recommended for children ages 8-12.

ISBN

978-1785925269

Language

English

Material Type

Book

Call Number

JUNIOR EF 610 ALD 2019

Copies

Author

Harber, Mary

Hingsburger, David

Place of Publication

Eastman, QC

Publisher

Diverse City Press

Publication Date

1998

Physical Description

Booklet: 28 p. : ill + 1 DVD (128 min)

Subject

Professional Caregivers/Service Providers

Professional Caregivers/Service Providers-Consumer Relations

Developmental Disability

Social Skills

Social Behaviour (includes boundaries)

Caregivers

Abstract

This training package looks at the delicate issue of touch and boundaries in providing personal care to people with developmental disabilities. Included in this package are two videos totaling almost three hours on "touch", "privacy" and "boundaries" by renowned trainer David Hingsburger. Along with the video lecture comes a training manual to allow trainers to utilize the tape in group training formats, or it can be used by individual staff to participate in self directed training.

Notes

Audience: counselling professionals, group home workers, management and justice professionals.

ISBN

1896230121

Language

English

Material Type

Kit

Call Number

EF 675 HAR 1998

Copies

Alternate Title

Jaan aullaqsimanirijanga : unikkaaq inungnut nutaqqanut aanniaqaqtunut ilanginnullu

Author

McCarthy, Patricia

Place of Publication

Iqaluit, NU

Publisher

Inhabit Media

Publication Date

2017

Physical Description

Softcover, 69 p.

Subject

Children with Cancer-Coping

Cancer

Cancer-Caregiving

Abstract

Jon loves his life in the North. But when he feels a pain that won't go away, he must go to a children's hospital in the south to find out what is wrong. A doctor there tells Jon he has cancer and will have to stay at the hospital for a while. Suddenly Jon's life is upside down! But with a handful of tricks from the doctors and nurses, and new friends, Jon discovers ways to cope with some of the tricky parts of having cancer. Accompanied by a resource guide for parents and caregivers, including hospital and support information, Jon's Tricky Journey opens a conversation between Inuit children facing a cancer diagnosis and their families to help make a difficult and confusing time more manageable.

ISBN

9781772271454

Language

English

Inuktitut

Material Type

Book

Call Number

JUNIOR FE 555 MCC 2017

Copies

Author

Johnstone, Matthew

Johnstone, Ainsley

Place of Publication

UK

Publisher

Robinson

Publication Date

2008

Physical Description

Softcover; 80 pages

Subject

Caregivers-Coping

Depression

Abstract

Millions of people will suffer from depression at some stage in their life. The Black Dog affects all relationships be it loved one, work place relations and even on a community level. Many may not have the tools to help support the sufferer and negate looking after their own wellbeing in the process.

This is a must-have guide for the partners, family, friends and colleagues of depression sufferers. It includes practical advice about recognising the symptoms of depression in a loved one, living with a depressed person and helping them to tame their Black Dog.

ISBN

9781845297435

Language

English

Material Type

Book

Call Number

EF 625 JOH 2008

Copies

Alternate Title

[La vie avant, pendant et apres: Les soins palliatifs pediatriques]

Author

Humbert, Nago

Place of Publication

Montreal, QC

Publisher

CHU Sainte-Justine

Publication Date

2012

Physical Description

Paperback, 335 p.

Subject

Coping with Chronic Illness-Children

Caregiving

Abstract

volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.

La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.

ISBN

9782896196197

Language

French

Material Type

Book

Call Number

EF 850.5 HUM 2012 STACKS

Copies