Author

Cooper, Celeste

Miller, Jeffrey

Place of Publication

Rochester, VT

Publisher

Healing Arts Press

Publication Date

2010

Physical Description

Softcover ; xiv, 433 p.

Subject

Chronic Fatigue Syndrome

Fibromyalgia. Fibrositis

Myofascial Pain Syndrome

Mind/Body

Abstract

Fibromyalgia, chronic myofascial pain, and chronic fatigue are often seen as interchangeable conditions, a belief held even by many health care providers. Nothing could be further from the truth-however, they do often coexist. Knowing if more than one of these disorders is present is extremely important, because the treatment for one of them can often exacerbate the problems caused by the others. Written by a registered nurse and a psychologist who has been treating these conditions since 1994, this book presents an integrative medical approach to these three disorders with a strong emphasis on utilizing and strengthening the mind-body connection to restore well-being. The authors begin with clear diagnostic guidelines for each condition and reference the latest scientific research on what causes these illnesses. Because many medical practitioners are relatively unfamiliar with these disorders, it can take several medical visits to arrive at a definitive diagnosis. Clear communication with medical personnel is key to diagnostic success. This book provides invaluable advice on how to describe symptoms, document health history, and keep a log of medical appointments. Included are interactive worksheets to facilitate these activities. The authors provide a thorough guide to numerous treatment options-from diet, exercise, and herbs to mindfulness meditation, yoga, and nonsteroidal anti-inflammatory drugs (NSAIDs). They also offer techniques to dispel the "brain fog" that these illnesses can create, offer guidance on the psychological issues that accompany these chronic pain disorders, and provide advice on how to build a personal support team. The final chapter gives advice on how to navigate the health care system, including step-by-step instructions for preparing an application to the Social Security Administration for disability benefits. An extensive resource section provides a wealth of contact information for helpful agencies and organizations, good sources for medical supplies, and a wide selection of suggested further reading. In short, this integrative treatment guide will open the door not only to physical recovery but also to emotional, mental, and spiritual well-being.

ISBN

9781594773235

Language

English

Material Type

Book

Call Number

FB 500 COO 2010

Copies

Alternate Title

The Nightingale Research Foundation review of the clinical and scientific basis of myalgic encephalomyelitis [or] chronic fatigue syndrome, also known as post-viral fatigue syndrome and chronic fatigue and immune dysfunctions syndrome

Editor

Hyde, Byron Marshall

Goldstein, Jay

Levine, Paul

Place of Publication

[Ottawa, ON]

Publisher

Nightingale Research Foundation

Publication Date

1992

Physical Description

Hardcover; 723 pages.

Subject

Chronic Fatigue Syndrome

Abstract

Eighty of the world's leading ME/CFS authorities have contributed their knowledge to produce a 750-page encyclopedia on the disease process that may be one of the biggest single causes of chronic illness in the world today. Known in the United States as Chronic Fatigue Syndrome and in Great Britain both as Myalgic Encephalomyelitis and Post-Viral Fatigue Syndrome, ME/CFS has provoked a chronic disabling illness in an estimated 1,000,000 persons in North America and Europe.

This book provides, in one superb 75-chapter source, an up-to-date, comprehensive account of current knowledge concerning the history, epidemiology, children with M.E., investigation, virology, immunology, muscle pathology, host response, food intolerance, brain mapping, neurophysiology, neuropsychology, psychiatry, sleep dysfunction, fibromyalgia syndrome, treatment and management.

This is an essential reference book for medical, government and public library reference rooms. This text is a unique vehicle for researchers, physicians and other health education and government officials, and is easily understandable by the general public interested in ME/CFS.

ISBN

9780969566205

Language

English

Material Type

Book

Call Number

FG 375 HYD 1992

Copies

Author

Christy, Elizabeth M.

Miller, James G. (illustrator)

Place of Publication

Denver, Colorado

Publisher

Outskirts Press, Inc.

Publication Date

2014

Physical Description

Softcover ; [18 p.], illustrations

Subject

Chronic Illness

Chronic Pain

Fibromyalgia. Fibrositis

Coping with Chronic Illness-Children

Abstract

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

Notes

Recommended by CCDP

ISBN

9781478732969

Language

English

Material Type

Book

Call Number

JUNIOR EF 850.5 CHR 2014

Copies

Alternate Title

Fibro Manual

Author

Liptan, Ginevra

Place of Publication

New York

Publisher

Ballantine Books

Publication Date

2016

Physical Description

Softcover ; xvi, 359 p.

Subject

Fibromyalgia. Fibrositis

Abstract

"The most up-to-date, comprehensive treatment guide to fibromyalgia, by a renowned physician who herself has the condition

"If you suffer from fibromyalgia and are struggling to get help from your doctor, you're far from alone. Ten million Americans experience the widespread muscle pain, profound fatigue, and fuzzy brain ('fibrofog') that have long frustrated both patients and doctors. In this unique resource, Ginevra Liptan, M.D., shares a cutting-edge new approach that goes far beyond mainstream medical knowledge to produce dramatic symptom improvement.

"Dr. Liptan's program incorporates clinically proven therapies from both alternative and conventional medicine, along with the latest research on experimental options like medical marijuana. Since many health care providers have limited fibromyalgia expertise, The FibroManual includes a thoroughly sourced 'health care provider guide' that enables readers to help their doctors help them.

"Alleviate fibromyalgia symptoms in four simple steps (Rest, Repair, Rebalance, and Reduce) and you will

- restore deep, restful sleep

- achieve long-lasting pain relief

- optimize hormone and energy balance

- reduce fatigue

"This accessible and empowering resource provides essential information about understanding and treating fibromyalgia from a physician who, as both patient and provider, understands the illness from the inside."--Provided by publisher.

Notes

Recommended by CCDP

ISBN

9781101967201

Language

English

Material Type

Book

Call Number

FB 515 LIP 2016

Copies

Author

Emmal, Marline

Place of Publication

[Victoria, BC?]

Publisher

Trafford Publishing

Publication Date

2001

Physical Description

Softcover ; 57 p.

Subject

Fibromyalgia. Fibrositis

Female Sexuality

Abstract

Fibromyalgia and Female Sexuality is the first book on fibromyalgia to explore how the various aspects of female sexuality can impact this baffling disorder. Understanding this impact can assist a woman in coping better with her fibromyalgia.

Entire chapters are devoted to intimacy, menstruation, pregnancy and menopause. This book provides up-to-date information on the many ramifications of female sexuality on fibromyalgia and gives sensible advise on how to manage the disorder's ups and downs.

Fibromyalgia and Female Sexuality is written in an easy-to-understand, conversational style. It is a self-help book that will enable the reader to alleviate some of the symptoms of pain, fatigue, moodiness and nonrestorative sleep.

It is recommended that the sexual partner of the fibromyalgia sufferer also read the book in order to assist her in overcoming the feelings of helplessness so often experienced in the face of this condition.

ISBN

9781552125809

Language

English

Material Type

Book

Call Number

FB 515 EMM 2001

Copies

URL

http://www.oup.com/us/ttw

Website Notes

Click on the URL to download clinical tools and helpful resources such as monitoring forms, worksheets, self-assessments, checklists and charts.

Author

Woods, Douglas W.

Piacentini, John C.

Chang, Susanna W.

Deckersbach, Thilo

Ginsburg, Golda S.

Peterson, Alan L.

Scahill, Lawrence D.

Walkup, John T.

Wilhelm, Sabine

Place of Publication

[Toronto, ON]

Publisher

Oxford University Press

Publication Date

2008

Physical Description

Softcover: 72 p.

Series

Treatments That Work

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

This workbook outlines an 11-session program for adults with tic disorders. Designed to be used in conjunction with visits to a qualified mental health professional, this program involves becoming aware of your tics so that you can better manage your disorder.

ISBN

9780195341300

Language

English

Material Type

Book

Call Number

FM 484 MAN 2008

Copies

Author

Woods, Douglas W.

Piacentini, John C.

Chang, Susanna W.

Deckersbach, Thilo

Ginsburg, Golda S.

Peterson, Alan L.

Scahill, Lawrence D.

Walkup, John T.

Wilhelm, Sabine

Place of Publication

[Toronto, ON]

Publisher

Oxford University Press

Publication Date

2008

Physical Description

Softcover: 86 p.

Series

Treatments That Work

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Mental Health

Abstract

This 11-session program uses Behavior Therapy to help your child become aware of his/her tics and the situations that make them worse. The program also includes relaxation techniques designed to help combat anxiety and stress, as well as relapse prevention strategies. Complete with psychoeducational information, as well as child-friendly forms and worksheets, this workbook will help your family better understand TS and the ways you can effectively support your child.

ISBN

9780195341294

Language

English

Material Type

Book

Call Number

FM 484 WOO 2008

Copies

Author

Free, Valerie

Place of Publication

[Victoria, BC?]

Publisher

Friesen Press

Publication Date

2016

Physical Description

Softcover ; 499 p.

Subject

Chronic Fatigue Syndrome

Abstract

Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported.

ISBN

9781460280508

Language

English

Material Type

Book

Call Number

FG 375 FRE 2016

Copies

Author

Anderson

Place of Publication

[Victoria, BC?]

Publisher

Tellwell Talent

Publication Date

2020

Physical Description

25 pages

Subject

Chronic Fatigue Syndrome

Abstract

What You See is Not How I Feel is a visually simple overview of how living with Chronic Fatigue feels. It opens conversation, clears misperceptions, and encourages understanding rather than judgement. Appropriate for children, adults, and professionals, and those with similar chronic illnesses; Fibromyalgia, Lyme, Multiple Sclerosis, Myalgic Encephalomyelitis, and Systemic Exertion Intolerance Disease.

ISBN

9780228819684

Language

English

Material Type

Book

Call Number

FG 375 AND 2020

YOUTH FG 275 AND 2020

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-diet_2015_Nov.pdf

Website Notes

Click on the link above to view/print.

Corporate Author

BC Women's Centre for Pelvic Pain & Endometriosis

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital + Health Centre

Publication Date

2015

Physical Description

PDF file, 5 p.

Subject

Chronic Pain

Pain Control

Abstract

Regardless of whether your chronic pain includes endometriosis, IC, or IBS, or a combination of all of these, following an anti-inflammatory diet can help to reduce the intensity of the pain you are experiencing. It is also essential to include lifestyle changes, such as increased activity and exercise as well as stress reduction. Stress reduction helps to calm the nervous system, which can then reduce inflammation and pain.

Language

English

Material Type

Handout

Online

Author

Lorig, Kate

Holman, Halsted

Sobel, David

Laurent, Diana

Gonzalez, Virginia

Minor, Marian

Edition

Canadian Edition, 4th

Place of Publication

Boulder, CO

Publisher

Bull Publishing Company

Publication Date

2013

Physical Description

Softcover ; vii, 368 p.

Subject

Chronic Illness

Mental Health/Illness

Fatigue

Pain

Depression

Abstract

"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.

"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.

ISBN

97819396693498

Language

English

Material Type

Book

Call Number

EF 800 LOR 2013

Copies

Editor

Dina, Carla Zanaboni

Porta, Mauro

Publisher

Routledge

Publication Date

2020

Physical Description

208 p.

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

Understanding Tourette Syndrome provides accessible, concise, evidence-based guidelines on this neurodevelopmental disorder, offering parents and professionals a deeper scientific understanding of the condition and its consequences. Zanaboni Dina and Porta explore signs, symptoms and treatment of the disease, with the aim of demonstrating to all those involved in the life of a TS child solutions to manage a range of situations from diagnosis to day-to-day life.

Therapies and social intervention, including Habit Reversal Training and Deep Brain Stimulation, are described, allowing caregivers to evaluate the best course of treatment. With a focus on improving quality of life by offering practical recommendations for managing the condition at school and in the family, it places additional emphasis on sibling relationships and the importance of childhood friendship. The authors? expert subject knowledge and extensive experience of working with children and families, makes the topic accessible for any reader, and case studies demonstrate how to apply scientific understanding of the condition to a real-life situation.

ISBN

9781138595606

Language

English

Material Type

Book

Call Number

FM 484 DIN 2020

Copies

Author

Holtz, Kristen (Writer)

Ziegert, Amanda K. (Director)

Place of Publication

Silver Spring, MD

Publisher

Danya International, Inc.

Publication Date

2003

Physical Description

1 VHS video: 17 minutes; 1 Teacher's guide: 64 pages

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Education. Schools

Abstract

This educational kit provides a straightforward and factual look at Tourette Syndrome from the perspective of teenagers. The video was filmed with the help of 10 teens with TS who not only developed the concept, but also star in the video. The accompanying facilitator's guide includes three suggested methods for presenting the video, along with additional resources and information about TS.

Notes

Grades: 9 - College

Language

English

Material Type

Kit

Call Number

FM 484 HOL 2003

Copies

Author

Walkup, John T. (ed.)

Mink, Jonathan W. (ed.)

McNaught, Kevin St. P. (ed.)

Place of Publication

Bloomington, IN

Publisher

Tourette Syndrome Association, inc.

Publication Date

2012

Physical Description

Softcover: 272 p.

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

Providing authoritative and scientific information about Tourette syndrome, "A Family's Guide to Tourette Syndrome" speaks to patients, families, care providers, academic institutions, and medical centers in easy-to-understand language about this neurodevelopmental disorder that affects children, adolescents, and adults worldwide. Each chapter is authored by leading neurologists, psychiatrists, psychologists, scientists, and others with expertise and research interests in Tourette syndrome.

Language

English

Material Type

Book

Call Number

FM 484 WAL 2012

Copies

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2004

Physical Description

Paperback: 160 p.

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

This essential guide to tic disorders and Tourette Syndrome tackles problems faced both at home and at school, such as adjusting to the diagnosis, the effect on siblings and classroom difficulties. The book offers advice on how to manage symptoms, describing psychological techniques such as habit reversal and massed practice and reviewing available medical treatments. In clear, accessible language, this book explains the clinical signs and symptoms of Tourette and related conditions, and their possible causes. Presenting practical strategies for dealing with associated difficulties, including low self-esteem, anger-management and bullying, this book will be a valuable tool for parents, teachers, social workers other professionals.

ISBN

9781843102038

Language

English

Material Type

Book

Call Number

FM 484 CHO 2004

Copies

Author

Buffolano, Sandra

Place of Publication

Oakland, CA

Publisher

Instant Help Books

Publication Date

2008

Physical Description

softcover; 119 pages

Series

An instant help book for parents & kids

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

Tics are a fact of life for kids with Tourette Syndrome (TS) and related disorders. And for most kids, the symptoms of their disorder aren't even the most frustrating part-others' reactions can make children feel anxious and extremely self-conscious.

Coping with Tourette Syndrome includes forty activities to help kids with TS, obsessive compulsive disorder (OCD), or attention-deficit hyperactivity disorder (ADHD) understand, prepare for, and mask their tics. Kids will also learn how to best explain their tics to friends and curious strangers using humor, games, or brief scripts they have prepared.

The activities in this workbook address managing TS and related disorders in specific situations, such as at school, at the movies, when out to dinner, on special occasions, when visiting friends for sleepovers or parties, when taking tests, and in places of worship. After completing these exercises, kids with TS will have all the tools they need to handle their tics with confidence and grace in any situation.

ISBN

9781572246324

Language

English

Material Type

Book

Call Number

JUNIOR FM 484 BUF 2008

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5900382

Author

Dundon, Raelene

Publisher

Jessica Kingsley Publishers

Publication Date

2019

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

This guide for parents is a complete introduction to autism and anxiety. Drawing on the author's clinical experience working with children and their families, it provides parents and carers with everything they need to know to help support their child.

It covers the basics such as what anxiety is, how it manifests behaviourally and why it is common in autism. The book also presents CBT-informed practical strategies for managing a common range of anxieties: separation, social, performance, phobias, and generalised anxiety. It includes chapters about related behaviours including Pathological Demand Avoidance (PDA) and advice on managing meltdowns.

ISBN

9781785926570

Language

English

Material Type

Ebook

Call Number

FM 272 DUN 2019

Alternate Title

Tourette syndrome : ten secrets to a happier life

Editor

Okun, Michael S.

Edition

English edition

Place of Publication

[Newberry, FL]

Publisher

Books4Patients

Publication Date

2017

Physical Description

Softcover; 153 pages

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

This book brings together 10 clinical and research experts in Tourette syndrome who are drawn from the Tourette Association of America Center of Excellence program. The book was co-written and edited by Amazon bestselling author Michael S. Okun, M.D. who, a leading authority in Tourette and who is known for his many books and publications on secrets to a happier life. The goal was to assemble 10 secrets to help people on their journey to a happier life with Tourette syndrome. The book is organized into a simple and easy to digest question and answer format. The book is a great read, but also an easy reference guide. The chapters are brimming with up to date and in many cases cutting edge strategies and knowledge about Tourette syndrome.

ISBN

9781542484213

Language

English

Material Type

Book

Call Number

FM 484 OKY 2017

Copies

Author

Marleau, Brigitte

Place of Publication

Montreal, QC

Publisher

Boomerang

Publication Date

2013

Physical Description

Hardcover, 25 p.

Series

Au coeur des differences

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

Thème : Le syndrome Gilles de la Tourette. Ce matin, je suis à l?hôpital. Ça y est, mes tics recommencent... Je penche la tête, je grimace et je cligne des yeux ! Le docteur explique à maman qu?avoir des tiques c?est comme bâiller : il est très difficile de résister. Trois secondes plus tard, maman et moi bâillons. Le docteur se met lui aussi à bâiller. Alors maman comprend, qu?il faut prendre le temps de l?expliquer aux gens.

ISBN

9782895956952

Language

French

Material Type

Book

Call Number

JUNIOR FM 484 MAR 2013

Copies

Alternate Title

[Laisse-moi t expliquer... Le syndrome Gilles de la Tourette]

Author

Vézina, Dominique

Place of Publication

Quebec, QC

Publisher

Midi Trente

Publication Date

2014

Physical Description

Paperback, 39 p., ill.

Subject

Tourette Syndrome. Gilles De La Tourette Syndrome

Movement Disorders

Abstract

Le syndrome de Gilles de la Tourette est un trouble neurologique qui occasionne des tics (mouvements ou sons involontaires). À cause du syndrome de Gilles de la Tourette, mon cerveau envoie parfois un mauvais message à mon corps, qui produit alors un mouvement ou un son que je n?ai pas voulu : un tic. J?ai des tics moteurs (mouvements) et des tics sonores (sons). Ce qui est embêtant, c?est que mes tics sont souvent forts ou même dérangeants. C?est gênant parce qu?alors, tout le monde me regarde !

ISBN

9782923827513

Language

French

Material Type

Book

Call Number

JUNIOR FM 484 VEZ 2014

Copies

Author

Kleinfeld, Judith

Wescott, Siobhan (Eds.)

Place of Publication

Alaska

Publisher

University of Alaska Press

Publication Date

1993

Physical Description

Softcover, 372 pp.

Subject

Fetal Alcohol Syndrome/Fetal Alcohol Effects. FAS/FAE

Abstract

Written for everyone who works with alcohol-affected children and their families, this book contains articles written by parents, teachers and professionals. Includes how prenatal alcohol exposure affects children and their families; parenting and parental advocacy; effective classroom practices and techniques for teachers; and helping families of alcohol-affected children. Contains practical advice and personal stories as well as resource information.

ISBN

0-912006-71-4

Language

English

Material Type

Book

Call Number

GK 590 KLE 1993

Copies

Author

Christie, Phil

Duncan, Margaret

Fidler, Ruth

Healy, Zara

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2012

Physical Description

Softcover : 206 pages

Series

JKP Essentials Series

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

Pathological Demand Avoidance Syndrome (PDA) is a developmental disorder that is being increasingly recognized as part of the autism spectrum. The main characteristic is a continued resistance to the ordinary demands of life through strategies of social manipulation, which originates from an anxiety-driven need to be in control.

This straightforward guide is written collaboratively by professionals and parents to give a complete overview of PDA. Starting with an exploration into the syndrome, it goes on to answer the immediate questions triggered when a child is first diagnosed, and uses case examples throughout to illustrate the impact of the condition on different areas of the child's life. Early intervention options and workable strategies for managing PDA positively will make day-to-day life easier for the child, their family and peers. New problems faced in the teenage years and how to assist a successful transition from adolescence to adulthood are also tackled. The book concludes with a valuable resources list.

Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for families, carers and anyone who knows a child with PDA

ISBN

9781849050746

Language

English

Material Type

Book

Call Number

FM 272 CHR 2012

Copies

Author

Bruni, Maryanne

Edition

2nd ed.

Place of Publication

[Bethesda, MD]

Publisher

Woodbine House

Publication Date

2006

Physical Description

xiv, 241 pages : illustrations ; 28 cm.

Subject

Down Syndrome

Motor Development

Parenting Children with Disabilities

Education. Schools

Abstract

This book explains the best practices and procedures for helping children master the finger and hand skills needed for home and school activities..

ISBN

9781890627676

Language

English

Material Type

Book

Call Number

GI 310 BRU 2006

Copies

Author

Peters, Dylan

Wendland, Zachary (Illustrator)

Miller, Kris Taft (Painter)

Place of Publication

Chandler, AZ

Publisher

Little Five Star

Publication Date

2009

Physical Description

Softcover, 50 p. : ill. ; 21 cm.

Subject

Nervous System/Nervous System Diseases-Children

Tourette Syndrome. Gilles De La Tourette Syndrome

Abstract

A nine year old boy tells us what it is like to live with Tourette Syndrome.

ISBN

9781589851627

Language

English

Material Type

Book

Call Number

JUNIOR FM 484 PET 2009

Copies

Author

Lauder, G.R.

Massey, Roslyn

Place of Publication

Bloomington, IN

Publisher

Xlibris Corporation

Publication Date

2010

Physical Description

Softcover, 100 pages.

Subject

Reflex Sympathetic Dystrophy. Causalgia

Coping with Pain

Coping with Chronic Illness Young Adult

Pain

Abstract

This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers? which included those who have been treated for CRPS ? to provide their feedback.

ISBN

9781453589953

Language

English

Material Type

Book

Call Number

YOUTH FM 630 LAU 2010a

Copies

Author

Larson, Elaine Marie

Strand, Vivian (illustrator)

Place of Publication

Shawnee Mission, KA

Publisher

Autism Asperger Publishing Co.

Publication Date

2006

Physical Description

Softcover; 56 pages

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

This book, laid out in an A-to-Z format, celebrates the extraordinary gifts and unique perspectives that ASD children possess. Each page of this playful alphabet book presents one of the children's many talents and abilities. The kid-friendly illustrations and clever text create a positive portrayal of children with ASD. Designed to help the children with ASD grow in self-awareness of their many capabilities, I Am Utterly Unique also encourages dialogue with siblings, friends, parents and teachers.

ISBN

1931282897

Language

English

Material Type

Book

Call Number

JUNIOR FM 272 LAR 2006

Copies

Place of Publication

Baltimore, MD

Publisher

Paul H Brookes Publishing Company

Publication Date

2011

Physical Description

Facilitator's Manual; softcover; 169 pages; includes CD

Child Workbook; Softcover; 95 pages

Parent Workbook; Softcover; 93 pages

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Anxiety. Anxiety Disorders

Abstract

This innovative, family-focused group therapy program helps children with high-functioning autism and Asperger syndrome conquer their anxiety-and participate more fully in home, school, and community life. Includes 15 complete sessions for children 8-14 and their parents.

ISBN

9781598571752

Language

English

Material Type

Kit

Call Number

FM 272 REA 2011

Copies

Author

Couwenhoven, Terri

Place of Publication

[Bethesda, MD]

Publisher

Woodbine House

Publication Date

2007

Physical Description

Softcover: 323 p.

Subject

Down Syndrome

Sexual Health

Social Skills

Parenting Children with Developmental Disabilities

Parenting Children with Disabilities

Social Behaviour (includes boundaries)

Sexuality

Friendship

Puberty

Relationships

Abstract

This resource, for parents and professionals, is written by a parent of a child with down syndrome who is also a sexual educator. It provides information about how to educate children and youth with intellectual disabilities about human sexuality, including such topics as: private body parts; expressing emotions; personal space; self-care; privacy; gender identity; and showing affection. The appendices contain teaching material and aids.

ISBN

9781890627331

Language

English

Material Type

Book

Call Number

GI 310 COU 2007

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6176683

Author

Lavin, Robert A.

Clayton, Sara

Zilliox, Lindsay

Publisher

Oxford Univerity Press

Publication Date

2020

Series

Brain and Life Books

Subject

Chronic Pain

Abstract

Accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alternative treatments (yoga and tai chi), and injections or surgery.

ISBN

9780190619701

Language

English

Material Type

Ebook

Call Number

FM 830 LAV 2020

Author

Maxwell, Kimberley

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Myelocytic Leukemia. Chronic Myelogenous Leukemia. Chronic Granulocytic Lukemia

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explores how chronic myeloid leukemia affects the body, and how different treatments work.

Language

English

Material Type

Book

Call Number

JUNIOR FE 354 MAX 2018

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

Author

Webster, Lisa

Holman, Halsted

Laurent, Diana

Minor, Marian

Place of Publication

Boulder, CO

Publisher

Bull Publishing Company

Publication Date

2015

Physical Description

Softcover ; vii, 366 p., 1 CD

Subject

Chronic Pain

Abstract

"This book is designed to help you manage your pain so that you can get on with living a satisfying, fulfilling life. Chronic pain includes many types of conditions from a variety of causes. Despite these differences, all readers of this book have one very important thing in common ? you are living with pain every day. To help you discover strategies and skills that will make a difference, this book emphasizes four concepts:

"1. Each person with chronic pain is unique. There is no one treatment or approach that is right for everybody.

"2. There are a number of things you can do to feel better. These things will not eliminate pain, but they will help you to better manage pain, and help you to become more active and more involved in life.

"3. With knowledge and experimentation, you are the best judge of which self-management tools and techniques are best for you.

"4. The responsibility for managing your chronic pain day-to-day rests with you, not anybody else. Many people can be of help to you ? your family and friends, your health care team. But, in the end, the responsibility for self-management is yours.

"Acknowledging that overcoming chronic pain is a daily challenge, this book provides you with the self-management tools to help you meet that challenge"--from Publisher

ISBN

9781936693771

Language

English

Material Type

Book

Call Number

FM 830 WEB 2015

Copies

Author

deLoache, Shawn

Maxwell, Kimberley

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2020

Physical Description

Softcover; 11 p.

Subject

Chronic Kidney Failure

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains what happens inside the body when a person has chronic kidney disease. Also explains how treatments work, and why eating healthy food is important.

Ages 7-12

ISBN

9781644551561

Language

English

Material Type

Book

Call Number

JUNIOR FP 440 DEL 2020

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-Intro-to-Program_v4_Nov2015.pdf

Website Notes

Click the link to view or print.

Corporate Author

BC Women's Centre for Pelvic Pain & Endometriosis

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital + Health Centre

Publication Date

2015

Physical Description

PDF file, 2 p.

Subject

Chronic Pain

Pain Control

Language

English

Material Type

Handout

Online

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCW410_CarpalTunnelSyndromePregnancy_2014.pdf

Author

Physiotherapy Department

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital & Health Centre

Publication Date

2014

Physical Description

PDF file: 2 p.

Subject

Pregnancy/Childbirth. Obstetrics

Pregnancy Complications

Massage

Exercise Warm-Up. Stretching

Abstract

This pamphlet provides information on Carpal Tunnel Syndrome in Pregnancy, including: What it is, signs and symptoms, treatments, and what happens after giving birth.

Language

English

Material Type

Handout

Online

Call Number

BCW410

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf

Website Notes

Click on the link to view/print.

Alternate Title

10 tips for caregivers of a child or youth with chronic pain

Corporate Author

Complex Pain Service

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

PDF: 2 p.

Subject

Pain

Chronic Pain

Abstract

This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.

Language

English

Material Type

Pamphlet

Online

Author

Selak, Joy H.

Overman, Steven S.

Edition

2nd Ed

Place of Publication

New York

Publisher

Demos Health

Physical Description

Softcover ; xxviii, 166 p.

Subject

Chronic Illness

Abstract

"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher

ISBN

9781936303427

Language

English

Material Type

Book

Call Number

EF 800 SEL 2013

Copies

Author

Fennell, Patricia A.

Place of Publication

Latham, New York

Publisher

Albany Health Management Publishing

Publication Date

2012

Physical Description

Softcover ; 253 p.

Subject

Chronic Illness

Abstract

This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher

ISBN

9780979640711

Language

English

Material Type

Book

Call Number

EF 800 FEN 2012

Copies

Author

Thorn, Beverly E.

Edition

2nd Ed.

Place of Publication

New York

Publisher

The Guilford Press

Physical Description

Softcover ; xx, 353 p.

Subject

Cognitive Therapy

Chronic Pain

Abstract

This book contains 10 treatment modules that draw on proven cognitive-behavioral therapy (CBT) strategies. It includes 58 reproducible client handouts and assessment tools.

ISBN

9781462531691

Language

English

Material Type

Book

Call Number

FM 880 THO 2017

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Scarlata, Kate

Place of Publication

New York, NY

Publisher

Hachette Book Group

Publication Date

2017

Physical Description

Softcover; 363 pages

Subject

Irritable Bowel Syndrome. Spastic Colon

Abstract

A cookbook dedicated to easy, delicious, everyday recipes for the many sufferers of IBS and other digestive disorders, by a New York Times bestselling author and former Bon Appét contributing editor

Do you suffer from IBS or a chronically sensitive stomach? The culprit may be your diet: many everyday foods contain FODMAPs -- a group of carbohydrates that can wreak havoc on your digestive system. Digestive health specialist Kate Scarlata and expert recipe developer Dé Wilson share their clear, accessible, three-step low-FODMAP diet. Backed by the most up-to-date, sound medical advice, The Low-FODMAP Diet Step by Step walks you through:

Identifying FODMAPs and what foods contain them

Customizing your own gut-friendly plan to alleviate painful symptoms

Using an elimination diet to help determine your food triggers

Stocking your low-FODMAP pantry, with food lists and more

Easy, delicious recipes for every meal, with specific food reintegration tips

ISBN

9780738219349

Language

English

Material Type

Book

Call Number

FK 550 SCA 2017

Copies

Author

O'Toole, Jennifer Cook

Place of Publication

Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2014

Physical Description

Hardcover: 246 p.

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Autism

Play/Activities

Developmental Disability

Abstract

The Asperkid's Game Plan provides over 100 original games and activities that engage children with Asperger syndrome. Demonstrating how just about anything can be turned into an opportunity for learning and growth, this book is bursting with go-to ideas for making simple play equipment at home and using it to develop skills that Asperkids struggle with, from fine motor and social skills, to planning and organization. The enthusiastic approach and fun lessons will inspire and motivate parents, educators, and therapists to make purposeful play a part of every Asperkid's day.

ISBN

9781849059596

Language

English

Material Type

Book

Call Number

FM 272 OTO 2014

Copies

Author

Donoghue, Paul J.

Siegel, Mary E.

Place of Publication

New York, NY

Publisher

W.W. Norton & Company, Inc.

Publication Date

2000

Physical Description

Softcover, 304 pages

Subject

Lifestyle changes with chronic illness

Abstract

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.

Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.

For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

Notes

Recommended by CCDP

ISBN

9780393320657

Language

English

Material Type

Book

Call Number

EF 820 DON 2000

Copies

Author

McClintock Greenberg, Tamara

Place of Publication

Springville, UT

Publisher

Plain Sight Publishing

Publication Date

2012

Physical Description

Softcover ; xiv, 157 p.

Subject

Chronic Illness

Abstract

"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.

"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.

"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover

ISBN

9781599559391

Language

English

Material Type

Book

Call Number

EF 800 GRE 2012

Copies

Author

Lynne, Kira

Place of Publication

[Canada]

Publisher

Moppet Press

Publication Date

2016

Physical Description

Softcover ; xxv, 361 p.

Subject

Chronic Pain

Relationships

Dating

Abstract

"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.

"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.

ISBN

9780994993502

Language

English

Material Type

Book

Call Number

FM 830 LYN 2016

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

eBook (176 pages)

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033539

Language

English

Material Type

Ebook

Call Number

YOUTH FM 850 ZOF 2019e

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

155 pages

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033522

Language

English

Material Type

Book

Call Number

YOUTH FM 850 ZOF 2019

Copies

Author

Zeltzer, Lonnie K.

Schlank, Christina Blackett

Edition

1st ed.

Place of Publication

New York, NY

Publisher

HarperCollins Publishers Ltd.

Publication Date

c2005

Physical Description

Papeback; xvi, 299 p.

Subject

Chronic Pain

Children's Health. Pediatrics

Abstract

This is a guide to control the pain that plagues a child from headaches to arthritis, irritable bowel syndrome, fibromyalgia, and more. Explains how to soothe the nervous system, reactivate the body's natural pain control mechanisms, determine which medications are most effective, implement relaxation techniques and reduce parents' guilt.

ISBN

9780060570170

Language

English

Material Type

Book

Call Number

FM 830 ZEL 2005

Copies