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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Questions and answers: Sexual health education for youth with physical disabilities

https://bcch.andornot.com/en/permalink/catalog112793
Public Health Agency of Canada. [Ottawa, ON]: Public Health Agency of Canada , 2013.
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Material Type
Book
Call Number
GA 110 PUB 2013
Availability
1 copy, 1 available
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities …
  1 url  
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Corporate Author
Public Health Agency of Canada
Place of Publication
[Ottawa, ON]
Publisher
Public Health Agency of Canada
Publication Date
2013
Physical Description
Softcover: 22 p.
Subject
Sexuality
Physical Disability. Physically Challenged
Sexual Health
Abstract
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities and to support the provision of comprehensive sexual health education that is inclusive of their needs.
Notes
French version also available: Questions and réponses: éducation en matière de santé sexuelle à l'intention des jeunes ayant une incapacité physique
ISBN
9781100544823
Language
English
Material Type
Book
Call Number
GA 110 PUB 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Not so different : What you really want to know about having a disability

https://bcch.andornot.com/en/permalink/catalog121622
Burcaw, Shane, Carr, Matt. New York, NY: Roaring Brook Press , 2017.
Call Number
JUNIOR GN 800 BUR 2017
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating…
Author
Burcaw, Shane
Carr, Matt
Place of Publication
New York, NY
Publisher
Roaring Brook Press
Publication Date
2017
Physical Description
40 pages
Subject
Physical Disabilty. Physically Challenged
Abstract
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed.
ISBN
978-1626727717
Language
English
Call Number
JUNIOR GN 800 BUR 2017
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Mia Lee is wheeling through middle school

https://bcch.andornot.com/en/permalink/catalog122264
Shang, Melissa, Shang, Eva. , 2016.
Material Type
Book
Call Number
ELEM GN 800 SHA 2016
Availability
1 copy, 1 available
Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Ang…
Author
Shang, Melissa
Shang, Eva
Publication Date
2016
Physical Description
Softcover ; 107 p.
Subject
Physical Disability. Physically Challenged
Wheelchairs
School
Fiction
Abstract
Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Angela starts being nice to her -- well, when other people are around, at least. But when Mia?s campaign posters for VP Club President mysteriously vanish -- no tape, no poster, no nothin? -- the presidential race gets real. With the help of her brain files, an awesome aide with keys to the whole school, and her friends, Rory, Daniela, and Caroline, Mia finds herself on a mission to prove Angela isn?t just an ordinary middle school mean girl, she?s a thief!
ISBN
9780692746905
Language
English
Material Type
Book
Call Number
ELEM GN 800 SHA 2016

Copies

BC Children's and Women's Family Library Available
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All kinds of friends, even green!

https://bcch.andornot.com/en/permalink/catalog108370
Senisi, Ellen B. [Bethesda, MD]: Woodbine House , 2002. 1st ed.
Material Type
Book
Call Number
JUNIOR FM 505 SEN 2002
Availability
1 copy, 1 available
In a school assignment, seven-year-old Moses, who has spina bifida and uses a wheelchair, reflects that his neighbor's disabled iguana resembles him because they both have figured out how to get where they want to be in different ways than those around them.
Author
Senisi, Ellen B.
Edition
1st ed.
Place of Publication
[Bethesda, MD]
Publisher
Woodbine House
Publication Date
2002
Physical Description
Hardcover, col. ill.; (unpaged).
Subject
Spina Bifida. Neural Tube Defects
Friendship
Physical Disability. Physically Challenged
Picture Books
Abstract
In a school assignment, seven-year-old Moses, who has spina bifida and uses a wheelchair, reflects that his neighbor's disabled iguana resembles him because they both have figured out how to get where they want to be in different ways than those around them.
ISBN
1890627356
Language
English
Material Type
Book
Call Number
JUNIOR FM 505 SEN 2002

Copies

Copy 1 BC Children's and Women's Family Library Available
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Magic moments : Twelve little stories about disability, family and fairly normal life

https://bcch.andornot.com/en/permalink/catalog113535
Bendall, Lisa. [Toronto, ON]: Twelve Fingers Press , 2015.
Material Type
Book
Call Number
GN 800 BEN 2015
Availability
1 copy, 1 available
This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter.…
Author
Bendall, Lisa
Place of Publication
[Toronto, ON]
Publisher
Twelve Fingers Press
Publication Date
2015
Subject
Physical Disability-Coping
Family
Abstract
This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter. They hold down full-time jobs, share a mortgage, have a dog--just like many other folks. You are invited to share this family's journey, from major milestones to fleeting yet magical moments.
ISBN
9781511752596
Language
English
Material Type
Book
Call Number
GN 800 BEN 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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Success stories from the frontline: Intellectual disabilities and mental health: An anthology of first person stories as submitted by patients and their families

https://bcch.andornot.com/en/permalink/catalog110178
Hombert, Madeline (editor); Friedlander, Robin & Donnelly, Tina (publishers). Port Coquitlam, BC: Friedlander/Donnelly , 2006.
Material Type
Book
Call Number
CD 255 HOM 2006
Availability
1 copy, 1 available
A collection of writing from a dozen parents and those dually diagnosed with developmental and mental health problems. Covers autism, obsessive compulsive disorder (OCD), as well as developmental disabilities.
  1 image  
Author
Hombert, Madeline (editor); Friedlander, Robin & Donnelly, Tina (publishers)
Place of Publication
Port Coquitlam, BC
Publisher
Friedlander/Donnelly
Publication Date
2006
Physical Description
Paperback, 189 p.
Subject
Mental Disorders-Coping for the Family
Developmental Disability
External
Abstract
A collection of writing from a dozen parents and those dually diagnosed with developmental and mental health problems. Covers autism, obsessive compulsive disorder (OCD), as well as developmental disabilities.
Notes
On Sale! Regular price = $15.00
ISBN
0978146700
Language
English
Material Type
Book
Call Number
CD 255 HOM 2006

Copies

Copy 1 BC Children's and Women's Family Library Available
Images
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Just ask: Be different, be brave, be you

https://bcch.andornot.com/en/permalink/catalog123981
Sotomayor, Sonia, Lopez, Rafael [ill.]. New York, NY: Penguin Random house , 2019.
Material Type
Book
Call Number
JUNIOR GK 100 SOT 2019
Availability
3 copies, 3 available
Feeling different, especially as a kid, can be tough. But in the same way that different types of plants and flowers make a garden more beautiful and enjoyable, different types of people make our world more vibrant and wonderful.; In Just Ask, United States Supreme Court Justice Sonia Sotomayor cel…
Author
Sotomayor, Sonia
Lopez, Rafael [ill.]
Place of Publication
New York, NY
Publisher
Penguin Random house
Publication Date
2019
Physical Description
Hardcover
Subject
Children's Health. Pediatrics
Autism Spectrum Disorder (includes Asperger Syndrome)
Diabetes
Asthma
Physical Disability. Physically Challenged
Blindness
Deafness
Dyslexia
Stuttering
Tourette Syndrome. Gilles De La Tourette Syndrome
Attention Deficit Disorder. Hyperactivity
Allergies
Down Syndrome
Abstract
Feeling different, especially as a kid, can be tough. But in the same way that different types of plants and flowers make a garden more beautiful and enjoyable, different types of people make our world more vibrant and wonderful.
In Just Ask, United States Supreme Court Justice Sonia Sotomayor celebrates the different abilities kids (and people of all ages) have. Using her own experience as a child who was diagnosed with diabetes, Justice Sotomayor writes about children with all sorts of challenges--and looks at the special powers those kids have as well. As the kids work together to build a community garden, asking questions of each other along the way, this book encourages readers to do the same: When we come across someone who is different from us but we're not sure why, all we have to do is Just Ask.
ISBN
9780525514121
Language
English
Material Type
Book
Call Number
JUNIOR GK 100 SOT 2019

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
copy 3 BC Children's and Women's Family Library Available
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A quick and easy guide to sex and disability

https://bcch.andornot.com/en/permalink/catalog124125
Andrews, A. Portland, OR: Limerence Press , 2021.
Material Type
Book
Call Number
YOUTH GA 110 AND 2021
Availability
1 copy, 1 available
This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.
Author
Andrews, A.
Place of Publication
Portland, OR
Publisher
Limerence Press
Publication Date
2021
Physical Description
Paperback; 70p.; Graphic novel
Subject
Disabilities
Sex Education
Sexual Health
LGBTQ
Abstract
This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.
ISBN
9781620106945
Language
English
Material Type
Book
Call Number
YOUTH GA 110 AND 2021

Copies

BC Children's and Women's Family Library Available
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Living a healthy life with chronic conditions: For ongoing physical and mental health conditions

https://bcch.andornot.com/en/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th.
Material Type
Book
Call Number
EF 800 LOR 2013
Availability
2 copies, 2 available
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while d…
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2013
Physical Description
Softcover ; vii, 368 p.
Subject
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Call Number
EF 800 LOR 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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The boy in the moon: A father's search for his disabled son

https://bcch.andornot.com/en/permalink/catalog111520
Brown, Ian. [Toronto, ON]: Vintage Canada , 2010.
Material Type
Book
Call Number
GK 655 BRO 2009
Availability
1 copy, 1 available
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Writ…
Author
Brown, Ian
Place of Publication
[Toronto, ON]
Publisher
Vintage Canada
Publication Date
2010
Physical Description
Softcover; 295 p.
Subject
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Genetic Disorders
Abstract
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Written with honesty and humour, this award winning book began as a Globe and Mail series.
ISBN
9780679310099
Language
English
Material Type
Book
Call Number
GK 655 BRO 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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Sanderson, Steven Keewatin. [Canada]: The Healthy Aboriginal Network , 2009.
Material Type
Book
Call Number
YOUTH GN 400 GRA 2009
Availability
1 copy, 1 available
In this comic book, Wendy doesn't have any friends her age and feels overwhelmed at school. Her little brother is more social but he's quick to lose his temper and get into fights. Something is clearly bothering them both. Good thing they're open to getting help and breaking down the stigma of ment…
Author
Sanderson, Steven Keewatin
Place of Publication
[Canada]
Publisher
The Healthy Aboriginal Network
Publication Date
2009
Physical Description
Softcover: 48 p.
Subject
Mental Health/Illness
Aboriginal Health
Abstract
In this comic book, Wendy doesn't have any friends her age and feels overwhelmed at school. Her little brother is more social but he's quick to lose his temper and get into fights. Something is clearly bothering them both. Good thing they're open to getting help and breaking down the stigma of mental health.
Language
English
Material Type
Book
Call Number
YOUTH GN 400 GRA 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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Happy endings, new beginnings: Navigating postpartum disorders

https://bcch.andornot.com/en/permalink/catalog113014
Feingold, Susan Benjamin. Far Hills, NJ: New Horizon Press , 2013.
Material Type
Book
Call Number
GH 410 FEI 2013
Availability
1 copy, 1 available
In Happy Endings, New Beginnings, Dr. Feingold presents her unique approach for navigating the journey through postpartum disorders. Guiding women through the challenges, feelings and distressing symptoms, she leads them to a new view of the postpartum experience and how to make it a positive, life…
Author
Feingold, Susan Benjamin
Place of Publication
Far Hills, NJ
Publisher
New Horizon Press
Publication Date
2013
Physical Description
Softcover: 195 p.
Subject
Postpartum Depression
Mental Health/Illness
Abstract
In Happy Endings, New Beginnings, Dr. Feingold presents her unique approach for navigating the journey through postpartum disorders. Guiding women through the challenges, feelings and distressing symptoms, she leads them to a new view of the postpartum experience and how to make it a positive, life-changing event. Here is an inspirational book filled with fascinating true stories of women Dr. Feingold has coached through post-birth disorders to take control of their new lives and find lasting fulfillment, as she did in her own life. It also provides a new perspective for therapists and other health professionals treating women during this critical period.
ISBN
9780882824024
Language
English
Material Type
Book
Call Number
GH 410 FEI 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
Availability
1 copy, 0 available
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010

Copies

BC Children's and Women's Family Library On Loan, due Friday, January 5, 2024
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Developing differently: A guide for parents of young children with global developmental delay, intellectual disability, or autism

https://bcch.andornot.com/en/permalink/catalog123770
Muggleton, Joshua, Attwood, Tony (contributor). London, UK and Philadelphia, PA: Jessica Kingsley Publishers , 2022.
Material Type
Book
Call Number
FM 270 MUG 2022
Availability
1 copy, 0 available
Parenting isn't easy, and parenting a child with a Global Developmental Delay, Intellectual Disability, or Autism can be challenging. However, a lot of parenting strategies are straightforward once you get your head around them. With the right knowledge, environment, interactions, responses and und…
Author
Muggleton, Joshua
Attwood, Tony (contributor)
Place of Publication
London, UK and Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2022
Physical Description
Softcover; 288 pages
Subject
Developmental Disability
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
Parenting isn't easy, and parenting a child with a Global Developmental Delay, Intellectual Disability, or Autism can be challenging. However, a lot of parenting strategies are straightforward once you get your head around them. With the right knowledge, environment, interactions, responses and understanding, you can help reduce your child's anxiety, build their confidence, and help them develop learning and communication skills.
Dr Joshua Muggleton provides a comprehensive, step-by-step parenting plan that will support you to embed good practice at home from day one. These strategies are designed to work across all neurodevelopmental conditions, and take into account co-occurring conditions such as ADHD, meaning none of the advice in the book requires your child to have a specific diagnosis. Also included are downloadable examples of charts, how-to guides for creating visual resources tailored to your child's individual needs, and bonus downloadable chapters on sleep and siblings.[See introduction for link.]
ISBN
9781787759978
Language
English
Material Type
Book
Call Number
FM 270 MUG 2022

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 19, 2024
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Siblings: Brothers and sisters of children with disability

https://bcch.andornot.com/en/permalink/catalog124360
Strohm, Kate. Miline, Ill.: Wakefield Press , 2014. Revised edition.
Material Type
Book
Call Number
GK 665 STR 2014
Availability
1 copy, 1 available
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.; Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confu…
Author
Strohm, Kate
Edition
Revised edition
Place of Publication
Miline, Ill.
Publisher
Wakefield Press
Publication Date
2014
Physical Description
Paperback; 249 pages
Subject
Siblings of Children with Disabilities
Abstract
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.
Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confusion to greater understanding and acceptance. She provides a forum for other siblings to describe their challenges and provides them with strategies to make sense of their experiences.
Through the workshops she has presented around Australia and overseas, Kate has been able to incorporate the experience and wisdom of many families and professionals, and provide clear tools for parents and practitioners to support brothers and sisters of those with a disability.
ISBN
9781743052334
Language
English
Material Type
Book
Call Number
GK 665 STR 2014

Copies

BC Children's and Women's Family Library Available
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Start here: A parent's guide to helping children and teens through mental health challenges

https://bcch.andornot.com/en/permalink/catalog122764
Bryden, Pier, Szatmari, Peter. Toronto, ON: Simon & Schuster , 2020.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6002581
Material Type
Ebook
Call Number
CD 100 BRY 2020b
"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children a…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6002581
Author
Bryden, Pier
Szatmari, Peter
Place of Publication
Toronto, ON
Publisher
Simon & Schuster
Publication Date
2020
Subject
Mental Health
Mental Health/Illness
Parenting
Young Adults-Mental Health. Psychology
Children Mental Health
Abstract
"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.
"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.
"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.
ISBN
9781508257936
Language
English
Material Type
Ebook
Call Number
CD 100 BRY 2020b
URLs
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Start here: A parent's guide to helping children and teens through mental health challenges

https://bcch.andornot.com/en/permalink/catalog122356
Bryden, Pier, Szatmari, Peter. Toronto, ON: Simon & Schuster , 2020.
Material Type
Book
Call Number
CD 100 BRY 2020
Availability
1 copy, 1 available
"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children a…
Author
Bryden, Pier
Szatmari, Peter
Place of Publication
Toronto, ON
Publisher
Simon & Schuster
Publication Date
2020
Physical Description
Softcover ; ix, 271 p.
Subject
Mental Health
Mental Health/Illness
Parenting
Young Adults-Mental Health. Psychology
Children Mental Health
Abstract
"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.
"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.
"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.
ISBN
9781508257929
Language
English
Material Type
Book
Call Number
CD 100 BRY 2020

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copy 2 BC Children's and Women's Family Library Available
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Ultimate guide to sex and disability: For all of us who live with disabilities, chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog114030
Kaufman, Miriam, Silverberg, Cory, Odette, Fran. San Francisco, CA: Cleis Press , 2007.
Material Type
Book
Call Number
GA 110 KAU 2007
Availability
2 copies, 2 available
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fati…
Author
Kaufman, Miriam
Silverberg, Cory
Odette, Fran
Place of Publication
San Francisco, CA
Publisher
Cleis Press
Publication Date
2007
Physical Description
Softcover, 345 p.
Subject
Developmental Disabilities
Sexuality
Abstract
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.
Notes
Recommended by CCDP
ISBN
9781573443043
Language
English
Material Type
Book
Call Number
GA 110 KAU 2007

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copy 2 BC Children's and Women's Family Library Available
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Billy's sister: Life when your sibling has a disability

https://bcch.andornot.com/en/permalink/catalog123303
Leving, Jessica, Sfar, Wiem [illustrator]. The Center for Siblings of People with Disabilities , 2019.
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019
Availability
1 copy, 1 available
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social wor…
Author
Leving, Jessica
Sfar, Wiem [illustrator]
Publisher
The Center for Siblings of People with Disabilities
Publication Date
2019
Physical Description
36 p.
Series
A Project of The Center for Siblings of People with Disabilities
Subject
Sibling Relationships
Siblings of Children with Disabilities
Abstract
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
For ages 3-8.
ISBN
9798618220682
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019

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BC Children's and Women's Family Library Available
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Receiving David: The gift of a son who taught us how to live and love

https://bcch.andornot.com/en/permalink/catalog111626
Knol, Faye. Grand Rapids, Michigan: William B. Eerdmans Publishing Company , 2010.
Material Type
Book
Call Number
GK 655 KNO 2010
Availability
1 copy, 1 available
David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remar…
Author
Knol, Faye
Place of Publication
Grand Rapids, Michigan
Publisher
William B. Eerdmans Publishing Company
Publication Date
2010
Physical Description
Softcover: 163 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Developmental Disability
Intensive Care Units-Neonatal. Infants
Abstract
David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remarkable gifts he taught those around him during his 22 years.
ISBN
9780802865434
Language
English
Material Type
Book
Call Number
GK 655 KNO 2010

Copies

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Far from the tree: Parents, children, and the search for identity

https://bcch.andornot.com/en/permalink/catalog112354
Solomon, Andrew. [Toronto, ON]: Scribner , 2012.
Material Type
Book
Call Number
GK 600 SOL 2012
Availability
1 copy, 1 available
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodi…
Author
Solomon, Andrew
Place of Publication
[Toronto, ON]
Publisher
Scribner
Publication Date
2012
Physical Description
Hardcover: 702 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Relationships
Parenting
Parenting Children with Physical Disabilities
Abstract
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
ISBN
9780743236713
Language
English
Material Type
Book
Call Number
GK 600 SOL 2012

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101 ways to make friends: Ideas and conversation starters for people with disabilities and their supporters

https://bcch.andornot.com/en/permalink/catalog112347
Johannes, Aaron, Stanfield, Susan. [Vancouver, BC?]: Spectrum Press , 2011.
Material Type
Book
Call Number
CF 300 JOH 2011
Availability
1 copy, 1 available
Authors Susan Stanfield and Aaron Johannes use their 50+ years of experience of working with folks with disabilities to offer this compendium of simple, practical strategies for expanding and deepening relationships.; The ideas were generated by folks with disabilities, their families, and those wh…
Author
Johannes, Aaron
Stanfield, Susan
Place of Publication
[Vancouver, BC?]
Publisher
Spectrum Press
Publication Date
2011
Physical Description
Softcover: [108 p.]
Subject
Friendship
Social Behaviour (includes boundaries)
Social Skills
Relationships
Developmental Disability
Abstract
Authors Susan Stanfield and Aaron Johannes use their 50+ years of experience of working with folks with disabilities to offer this compendium of simple, practical strategies for expanding and deepening relationships.
The ideas were generated by folks with disabilities, their families, and those who support them. This tool book is for those interested in one of the final questions about community living: how to support folks to develop real, lasting relationships.
ISBN
9781257056446
Language
English
Material Type
Book
Call Number
CF 300 JOH 2011

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Treating eating problems of children with autism spectrum disorders and developmental disabilities

https://bcch.andornot.com/en/permalink/catalog112520
Williams, Keith E., Foxx, Richard M. Austin, Texas: PRO-ED, Inc. , 2007.
Material Type
Book
Call Number
FM 272 WIL 2007
Availability
2 copies, 2 available
This is a two-part book written for caregivers and professionals who work with children with feeding problems. It presents behavioral interventions and approaches on solving a child's resistance to eating. * Part One was specifically written for teachers, parents, and caregivers with no prior profe…
Author
Williams, Keith E.
Foxx, Richard M.
Place of Publication
Austin, Texas
Publisher
PRO-ED, Inc.
Publication Date
2007
Physical Description
Softcover: 201 p.
Subject
Feeding and Nutrition
Autism Spectrum Disorder (includes Asperger Syndrome)
Autism
Developmental Disability
Abstract
This is a two-part book written for caregivers and professionals who work with children with feeding problems. It presents behavioral interventions and approaches on solving a child's resistance to eating. * Part One was specifically written for teachers, parents, and caregivers with no prior professional experience or training on feeding problems. * Part Two was written for professionals, providing detailed information on how to apply behavioral assessment and developing individualized interventions based on a child's eating behaviors. The behavioral interventions and procedures presented in this book can also be integrated into oral motor or dysphagia therapy. Includes references and brief descriptions.
ISBN
9781416402480
Language
English
Material Type
Book
Call Number
FM 272 WIL 2007

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101 ways to facilitate making friends: How to engage and deepen support networks for people with disabilities

https://bcch.andornot.com/en/permalink/catalog112346
Johannes, Aaron, Reynolds, Jim, Stanfield, Susan. [Vancouver, BC?]: Spectrum Press , 2011.
Material Type
Book
Call Number
CF 300 WAY 2011
Availability
1 copy, 1 available
On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, an…
Author
Johannes, Aaron
Reynolds, Jim
Stanfield, Susan
Place of Publication
[Vancouver, BC?]
Publisher
Spectrum Press
Publication Date
2011
Physical Description
Softcover: 198 p.
Subject
Friendship
Social Behaviour (includes boundaries)
Social Skills
Relationships
Developmental Disability
Abstract
On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, and what it means to be a good friend or neighbour, son or daughter, brother or sister, etc.
ISBN
9781257060504
Language
English
Material Type
Book
Call Number
CF 300 WAY 2011

Copies

Copy 1 BC Children's and Women's Family Library Available
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Teaching motor skills to children with Cerebral Palsy and similar movement disorders: A guide for parents and professionals

https://bcch.andornot.com/en/permalink/catalog111691
Martin, Sieglinde. [Bethesda, MD]: Woodbine House , 2006.
Material Type
Book
Call Number
FM 496 MAR 2006
Availability
1 copy, 1 available
This book is designed for parents, therapists, and other caregivers to help young children with gross motor delays learn and practice motor skills outside of therapy sessions. Written by an experienced physical therapist who is also the mother of a child with cerebral palsy, this comprehensive guid…
Author
Martin, Sieglinde
Place of Publication
[Bethesda, MD]
Publisher
Woodbine House
Publication Date
2006
Physical Description
Softcover: 237 p.
Subject
Cerebral Palsy
Movement Disorders
Motor Development
Parenting Children with Physical Disabilities
Abstract
This book is designed for parents, therapists, and other caregivers to help young children with gross motor delays learn and practice motor skills outside of therapy sessions. Written by an experienced physical therapist who is also the mother of a child with cerebral palsy, this comprehensive guide examines the physical characteristics of cerebral palsy and similar conditions - muscle tightness and weakness, increased or decreased flexibility, abnormal reflexes, impaired sensory perception- that affect a child's ability to sit, crawl, stand, and walk.
Includes dozens of exercises with accompanying photos that parents may incorporate into daily routines at home with the guidance and support of their child's physical therapist.
Exercises address: head control, protective reactions, proper positioning, independent sitting with and without arm support, transitional movements, daily stretching, improving muscle strength and coordination, balance training, gait training.
ISBN
9781890627720
Language
English
Material Type
Book
Call Number
FM 496 MAR 2006

Copies

Copy 1 BC Children's and Women's Family Library Available
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Series III sexuality

https://bcch.andornot.com/en/permalink/catalog111061
YAI National Institute for People with Disabilities. New York, NY: YAI National Institute for People with Disabilities , 2009.
Material Type
Kit
Call Number
CF 310 YAI 2009c
The third DVD in this three-part series, participants will learn what they can do to have a healthy and enjoyable sexual relationship. Topics covered include preparing for a date, privacy, ways of being sexual without having intercourse, discussing and negotiating what sexual acts you do and don't …
Corporate Author
YAI National Institute for People with Disabilities
Place of Publication
New York, NY
Publisher
YAI National Institute for People with Disabilities
Publication Date
2009
Physical Description
1 DVD and 1 CD-ROM
Series
Relationship Series for People with ID/DD
Subject
Sexuality
Relationships
Developmental Disability
Sexual Health
Abstract
The third DVD in this three-part series, participants will learn what they can do to have a healthy and enjoyable sexual relationship. Topics covered include preparing for a date, privacy, ways of being sexual without having intercourse, discussing and negotiating what sexual acts you do and don't want to do with your partner.
Language
English
Material Type
Kit
Call Number
CF 310 YAI 2009c
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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

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Children's Health and Illness Recovery Program (CHIRP): Clinician guide

https://bcch.andornot.com/en/permalink/catalog124615
Carter, Bryan D., Kronenberger, William G., Scott, Eric L., Brady, Christine E. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020b
Availability
1 copy, 1 available
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Brady, Christine E.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 173 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.
This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.
ISBN
9780190070267
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020b

Copies

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How to live well with chronic pain and illness: A mindful guide

https://bcch.andornot.com/en/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015.
Material Type
Book
Call Number
EF 850 BER 2015
Availability
2 copies, 2 available
Comfort, understanding, and advice for those who are suffering?and those who care for them.; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges an…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2015
Physical Description
337 pages
Subject
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Call Number
EF 850 BER 2015

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library Available
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Young, sick, and invisible: A skeptic's journey with chronic illness

https://bcch.andornot.com/en/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016.
Material Type
Book
Call Number
EF 800 BUL 2016
Availability
1 copy, 1 available
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of de…
Author
Bula, Ania
Place of Publication
Durham, North Carolina
Publisher
Pitchstone Publishing
Publication Date
2016
Physical Description
Softcover ; 224 p.
Subject
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher
Notes
Recommended by CCDP
ISBN
9781634310734
Language
English
Material Type
Book
Call Number
EF 800 BUL 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

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You don't look sick! : Living well with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog122326
Selak, Joy H., Overman, Steven S. New York: Demos Health 2nd Ed.
Material Type
Book
Call Number
EF 800 SEL 2013
Availability
2 copies, 1 available
"You Don√åt Look Sick chronicles one person√ås true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness√õGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspe…
Author
Selak, Joy H.
Overman, Steven S.
Edition
2nd Ed
Place of Publication
New York
Publisher
Demos Health
Physical Description
Softcover ; xxviii, 166 p.
Subject
Chronic Illness
Abstract
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher
ISBN
9781936303427
Language
English
Material Type
Book
Call Number
EF 800 SEL 2013

Copies

copy 2 BC Children's and Women's Family Library On Loan, due Thursday, June 13, 2024
BC Children's and Women's Family Library Available
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The chronic illness workbook : Strategies and solutions for taking back your life

https://bcch.andornot.com/en/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012.
Material Type
Book
Call Number
EF 800 FEN 2012
Availability
2 copies, 2 available
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia…
  1 image  
Author
Fennell, Patricia A.
Place of Publication
Latham, New York
Publisher
Albany Health Management Publishing
Publication Date
2012
Physical Description
Softcover ; 253 p.
Subject
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Call Number
EF 800 FEN 2012

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
Images
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In Sickness as in Health: Helping Couples Cope with the Complexities of Illness

https://bcch.andornot.com/en/permalink/catalog124001
Kivowitz, Barbara, Weisman, Roanne. Petaluma, CA: Roundtree Press , 2013.
Material Type
Book
Call Number
EF 800 KIV 2013
Availability
1 copy, 1 available
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this pers…
Author
Kivowitz, Barbara
Weisman, Roanne
Place of Publication
Petaluma, CA
Publisher
Roundtree Press
Publication Date
2013
Physical Description
Softcover; 192 pages
Subject
Chronic Illness
Abstract
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.
ISBN
9781937359133
Language
English
Material Type
Book
Call Number
EF 800 KIV 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://bcch.andornot.com/en/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014.
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014
Availability
1 copy, 1 available
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place of Publication
Denver, Colorado
Publisher
Outskirts Press, Inc.
Publication Date
2014
Physical Description
Softcover ; [18 p.], illustrations
Subject
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
Notes
Recommended by CCDP
ISBN
9781478732969
Language
English
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014

Copies

BC Children's and Women's Family Library Available
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Show me what my friends can see: A developmental guide for parents of babies with severely impaired sight and their professional advisors

https://bcch.andornot.com/en/permalink/catalog106911
Sonksen, Patricia, Stiff, Blanche. London, UK: Institute of Child Health , 1991.
Material Type
Book
Call Number
FH 300 SON 1991
Availability
1 copy, 1 available
A book aimed at helping parents of visually impaired babies by providing activities and play ideas.
Author
Sonksen, Patricia
Stiff, Blanche
Place of Publication
London, UK
Publisher
Institute of Child Health
Publication Date
1991
Physical Description
Paperback, 64 p.
Subject
Vision/Vision Disorders. Visual Impairments
Child Development
Blindness
Blindness-Coping
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Abstract
A book aimed at helping parents of visually impaired babies by providing activities and play ideas.
ISBN
095175260
Language
English
Material Type
Book
Call Number
FH 300 SON 1991

Copies

Copy 4 BC Children's and Women's Family Library Available
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Laisse-moi t'expliquer... La dyspraxie

https://bcch.andornot.com/en/permalink/catalog114608
Philippon, Julie. Quebec, QC: Midi Trente , 2015.
Material Type
Book
Call Number
JUNIOR FM 270 PHI 2015
Availability
1 copy, 1 available
Bonjour ! Je m?appelle Camille. J?ai 9 ans. Je collectionne les figurines, j?adore les chevaux et le théâtre et je suis? très maladroite. En fait, j?ai un handicap qui s?appelle la dyspraxie. Sais-tu ce que c?est ? En fait, la dyspraxie (ou trouble d?acquisition de la coordination) est un trouble n…
Alternate Title
[Laisse-moi t expliquer... La dyspraxie]
Author
Philippon, Julie
Place of Publication
Quebec, QC
Publisher
Midi Trente
Publication Date
2015
Physical Description
Paperback, 39 p., ill.
Subject
Developmental Disability
Abstract
Bonjour ! Je m?appelle Camille. J?ai 9 ans. Je collectionne les figurines, j?adore les chevaux et le théâtre et je suis? très maladroite. En fait, j?ai un handicap qui s?appelle la dyspraxie. Sais-tu ce que c?est ? En fait, la dyspraxie (ou trouble d?acquisition de la coordination) est un trouble neurologique qui affecte la capacité à planifier, à organiser et à automatiser les gestes moteurs pour réaliser une action. En d?autres termes, c?est une difficulté à effectuer les bons mouvements. Destiné aux enfants d?âge scolaire et à leurs parents, cet album documentaire présente, un peu à la manière d?un scrapbook réalisé par un enfant, l?histoire de Camille, qui est dyspraxique. Simple et concret, cet ouvrage de vulgarisation explique aux enfants, dans leurs mots, ce qu?est la dyspraxie. Camille y aborde les difficultés et les questionnements liés à son intégration scolaire, à sa vie de famille et aux divers défis psychosociaux qu?entraîne sa condition. Plusieurs trucs concrets et conseils avisés agrémentent cet ouvrage illustré par les enfants de l?École Saint-Jean-Baptiste à Jonquière.
ISBN
9782923827636
Language
French
Material Type
Book
Call Number
JUNIOR FM 270 PHI 2015

Copies

copy 1 BC Children's and Women's Family Library Available
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Ethics of touch: Establishing and maintaining appropriate boundaries in service to people with developmental disabilities

https://bcch.andornot.com/en/permalink/catalog111218
Harber, Mary, Hingsburger, David. Eastman, QC: Diverse City Press , 1998.
Material Type
Kit
Call Number
EF 675 HAR 1998
Availability
1 copy, 1 available
This training package looks at the delicate issue of touch and boundaries in providing personal care to people with developmental disabilities. Included in this package are two videos totaling almost three hours on "touch", "privacy" and "boundaries" by renowned trainer David Hingsburger. Along w…
Author
Harber, Mary
Hingsburger, David
Place of Publication
Eastman, QC
Publisher
Diverse City Press
Publication Date
1998
Physical Description
Booklet: 28 p. : ill + 1 DVD (128 min)
Subject
Professional Caregivers/Service Providers
Professional Caregivers/Service Providers-Consumer Relations
Developmental Disability
Social Skills
Social Behaviour (includes boundaries)
Caregivers
Abstract
This training package looks at the delicate issue of touch and boundaries in providing personal care to people with developmental disabilities. Included in this package are two videos totaling almost three hours on "touch", "privacy" and "boundaries" by renowned trainer David Hingsburger. Along with the video lecture comes a training manual to allow trainers to utilize the tape in group training formats, or it can be used by individual staff to participate in self directed training.
Notes
Audience: counselling professionals, group home workers, management and justice professionals.
ISBN
1896230121
Language
English
Material Type
Kit
Call Number
EF 675 HAR 1998

Copies

Copy 1 BC Children's and Women's Family Library Available
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75 exercices thérapeutiques pour future maman: Prévenir et soulager les douleurs et l'inconfort liés à la grossesse et à la période postnatale

https://bcch.andornot.com/en/permalink/catalog114333
Fecteau, Emilie. Montreal, QC: Les Editions de L'Homme , 2015.
Material Type
Book
Call Number
GH 270 FEC 2015
Availability
1 copy, 1 available
Grâce aux progrès de la science, nous savons maintenant que le mouvement fait partie intégrante de la santé de la future maman et de son bébé. Or, puisque de grands changements s'opèrent dans le corps de la femme enceinte, la majorité des principes d'entraînement traditionnels ne s'applique plus à …
Alternate Title
[75 exercices therapeutiques pour future maman: Prevenir et soulager les douleurs et l inconfort lies a la grossesse et a la periode postnatale]
Author
Fecteau, Emilie
Place of Publication
Montreal, QC
Publisher
Les Editions de L'Homme
Publication Date
2015
Physical Description
Paperback, 191 p., ill.
Subject
Pregnancy
Prenatal Care-Fitness
Abstract
Grâce aux progrès de la science, nous savons maintenant que le mouvement fait partie intégrante de la santé de la future maman et de son bébé. Or, puisque de grands changements s'opèrent dans le corps de la femme enceinte, la majorité des principes d'entraînement traditionnels ne s'applique plus à sa situation. C'est pourquoi ce livre propose des exercices respectant spécifiquement les besoins musculaires et articulaires qui évoluent au cours des neuf mois de la grossesse et des six mois suivant la naissance de l'enfant. Cet ouvrage contient également de judicieux conseils et de nombreux programmes pour prévenir et soulager les douleurs associées à la grossesse et à la période postnatale, pour prévenir ou éliminer les inconvénients fréquents, pour corriger les problèmes de posture les plus courants et préparer le corps à l'accouchement afin de faciliter le travail. La nouvelle maman pourra ainsi reprendre le contrôle de son corps après l'accouchement et revenir en toute sécurité à l'entraînement ou au sport.
ISBN
9782761941846
Language
French
Material Type
Book
Call Number
GH 270 FEC 2015

Copies

copy 1 BC Children's and Women's Family Library Available
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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In praise of slow: How a worldwide movement is challenging the cult of speed

https://bcch.andornot.com/en/permalink/catalog124026
Honore, Carl. Toronto, ON: Vintage Canada , 2004.
Material Type
Book
Call Number
EF 820 HON 2004
Availability
1 copy, 0 available
These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the …
Author
Honore, Carl
Place of Publication
Toronto, ON
Publisher
Vintage Canada
Publication Date
2004
Physical Description
Softcover; 310 pages
Subject
Lifestyle changes with chronic illness
Abstract
These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the age of rage.
Carl Honore has discovered a movement that is quickly working its way into the mainstream. Groups of people are developing a recipe for living better in a fast-paced, modern environment by striving for a new balance between fast and slow. In an entertaining and hands-on investigation of this new movement, Honore takes us from a Tantric sex workshop in a trendy neighbourhood in London, England to Bra, Italy, the home of the Slow Food, Slow Cities and Slow Sex movements. He examines how we can continue to live productive lives by embracing the tenets of the slow movement.
ISBN
9780676975727
Language
English
Material Type
Book
Call Number
EF 820 HON 2004

Copies

BC Children's and Women's Family Library On Loan, due Thursday, June 13, 2024
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Sick and tired of feeling sick and tired: Living with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog125122
Donoghue, Paul J., Siegel, Mary E. New York, NY: W.W. Norton & Company, Inc. , 2000.
Material Type
Book
Call Number
EF 820 DON 2000
Availability
1 copy, 0 available
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.; Since its first publication, Sick and…
Author
Donoghue, Paul J.
Siegel, Mary E.
Place of Publication
New York, NY
Publisher
W.W. Norton & Company, Inc.
Publication Date
2000
Physical Description
Softcover, 304 pages
Subject
Lifestyle changes with chronic illness
Abstract
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.
Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.
For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Notes
Recommended by CCDP
ISBN
9780393320657
Language
English
Material Type
Book
Call Number
EF 820 DON 2000

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 26, 2024
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://bcch.andornot.com/en/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014.
Material Type
Book
Call Number
EF 850.5 CHA 2014
Availability
1 copy, 1 available
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Author
Chartre, Marie-Eve
Gagne, Johanne
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2014
Physical Description
Paperback, 127 p.
Subject
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Call Number
EF 850.5 CHA 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog123758
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
Material Type
Book
Call Number
EF 850.5 SCH 2021b
Availability
1 copy, 1 available
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Physical Description
251 pages
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Book
Call Number
EF 850.5 SCH 2021b

Copies

BC Children's and Women's Family Library Available
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